The FSHD Global Research Foundation is a pure Australian not-for-profit organisation investing 100% of all tax deductible donations funding both basic epigenetics and therapeutic clinical trials, establishing drug developments to prevent muscle wasting. With a global footprint on science, FSHD Global award winning structure relies on non tax deductible revenue and sponsorships.
The Foundation is committed to advancing global medical research, education and collaboration to improve quality of life and ultimately find a cure for Facioscapulohumeral Dystrophy. Through transparency, accountability, good governance and pure passion we aim to achieve results as quickly as possible.
The RMHNF was established in 1992, to raise funds to support all forms of research and clinical activities of the Neurosciences at The Royal Melbourne Hospital.